Morgellons Education and Patient Resources
The New Morgellons Movement · Education and public awareness
Start with the findings
Clear descriptions. Better questions.
Morgellons education should help people describe what they experience, understand what studies actually measured, and recognize the limits of a proposed explanation. We build patient-facing guides around those questions.
Learn the language
Use an illustrated glossary to distinguish ulcers, erosions, crusts, papules and other skin findings.
Read the evidence
Compare observations, material analysis and proposed causes in the detailed research reviews.
Document clearly
Use wider views, detail images and a consistent record to preserve the context of a skin finding.
Our approach to Morgellons education
We follow Lai’s distinction between filament-defined Morgellons and delusional infestation, while keeping diagnostic validation and cause open to investigation. Describing a physical finding, identifying material and assessing a belief require different evidence. Read Lai and colleagues’ review.
The same standard for every explanation
A real observation can receive an unsupported explanation. A psychiatric interpretation can also be inadequately documented. Our educational materials ask what the evidence establishes in either case.
Recently revised evidence guides
These introductions have been revised to match the source-focused approach developed on MorgellonsSurvey.org. Dated correction notes explain substantive changes; original article URLs remain in place.
| Guide | What it helps you examine |
|---|---|
| Morgellons Metagenomics: A Signal Worth Testing, Not a Final Verdict | A five-person family preprint reports a microbial signal. Here is what it contributes, what remains uncertain, and why the earlier verdict needed correction. |
| Morgellons Diagnostic Criteria: Proposed Findings and What Still Needs Validation | Why proposed Morgellons criteria, clinician-observed filaments, associated symptoms and diagnostic validation must be described separately. |
| Can Morgellons Be Cured? What Treatment Evidence Can Tell Us | Separate skin healing, symptom relief and evidence of cause. A review of the doxycycline case, study limitations and the outcomes research still needs. |
| Morgellons Facial Wounds: What the Cheek-Wound Case Report Shows | A close look at the 2022 facial-wound report: observed fibers, the authors’ diagnosis, the limits of the accessible record and missing follow-up. |
| Lyme Disease Guidelines: Where IDSA and ILADS Differ | A comparison of named Lyme disease guidelines, their persistent-symptom recommendations, evidence grades and limits for Morgellons interpretation. |
| HHS Lyme Disease Roundtable: What Was Announced and What It Means | What HHS announced about LymeX and coordinated care, the CMS eligibility conditions, and why policy announcements do not settle biological cause. |
| Lyme Disease Advocacy: How to Evaluate Claims About Access to Care | A revised response to Richard Horowitz’s access-to-care claim, focused on evidence, comparable populations and the limits of personal experience. |
The new free Morgellons course
The free Introduction to Morgellons course brings together six short, source-based lessons, practice quizzes and a final assessment. Read freely, or sign in to save your progress and earn a verifiable certificate of completion. The lessons include the 2026 research discussed in our recent reviews.
Current research and practical resources
- Morgellons without skin lesions: reviewing the proposed subgroup
- Deep sores, facial wounds and scarring: comparing case reports
- Skin material: what composition and specimen context establish
- Reading the 2026 fiber review
- Reading the 2026 psychodermatology review
- Bartonella: patient findings, tick testing and transmission evidence
Contribute your experience
Morgellons Survey 3.0 records reported experiences. Participation is not a diagnosis, and a self-selected questionnaire should not be treated as a population-prevalence study. Visit the survey page for its current participation and privacy information.
How the two sites work together
Morgellons.io provides accessible education, the course and community entry points. MorgellonsSurvey.org carries the detailed research reviews, illustrated glossary, documentation resources and survey. This site links to those resources rather than presenting duplicate copies as separate evidence.
Edited by Jeremy Murphree, patient advocate. These materials support understanding and documentation; they do not diagnose a reader or establish a treatment plan.