The New Morgellons Movement · Education and public participation

The New Morgellons Movement produces MorgellonsSurvey.org, where we bring together evidence reviews, illustrated explanations and practical tools for documenting skin concerns.

Our third survey, Morgellons Survey 3.0, is now open to the public. It asks what people have noticed, what they recall being examined, and how those experiences affect daily life. You do not need a diagnosis—or even to use the Morgellons label—to take part.

One movement, two connected websites

The two websites serve different parts of the same work. Morgellons.io offers accessible education, the introductory course and an entry point to our resources. MorgellonsSurvey.org carries the detailed research reviews, illustrated glossary, documentation guides and survey.

Producing those resources means making the reasoning visible: identifying a source, explaining what it reports, distinguishing a finding from an interpretation, and correcting our own work when it needs correction. We apply that standard to every explanation, including ones we find persuasive.

• Evidence reviews examine what studies measured and how far their conclusions reach.
• The illustrated glossary helps readers describe skin findings more precisely.
• The photography guide and Clinical Visit Pack help organize a record for a clinical conversation.

These resources connect patient experience with questions that can be checked. Linking between the sites also makes their shared origin clear: a cross-link is a route to more detail, rather than a second, independent source of evidence.

Why the third survey separates observations from explanations

A skin change, a sensation, material someone notices and a clinician’s explanation are different pieces of information. Survey 3.0 records them separately, without requiring respondents to agree on a cause.

For example, it distinguishes open sores from other skin changes. It asks where fibers or thread-like material appeared to be located. It also separates what a person noticed from what they remember a clinician saying.

The examination questions refer to the same most recent in-person visit, including the clinician’s type of practice and the explanation given. Other questions cover biopsies or laboratory examination, interference with daily activities and barriers to care.

Who can take part in Morgellons Survey 3.0?

Adults can participate with or without sores, symptoms or a diagnosis. People who currently have concerns, people whose concerns are in the past, and people with a family, professional or general interest can describe their own situation.

Answer about yourself, rather than reporting another person’s health. Follow-up questions depend on earlier answers, so everyone will not see the same route through the questionnaire.

What participation involves

No account is required. The questions are optional, and you can review your answers before submitting them. The questionnaire does not request your name, email address or photographs.

Read the participant information on the survey page before deciding to take part. Keep the private withdrawal code provided after submission if you later want to remove your response. The site’s privacy policy provides further information.

What the responses can help us understand

The responses can describe the experiences of the people who choose to participate: the skin changes they report, their accounts of examinations, and the difficulties they encounter in daily life or care. Those patterns can help frame questions for further investigation.

Because participation is voluntary and self-selected, the responses will not represent everyone with Morgellons-related concerns. They cannot establish how common a condition is in the population, determine its cause or validate a diagnostic subgroup. A reported examination finding remains the participant’s account, rather than an independently verified clinical record.

A note on questionnaire validation and reporting

The questionnaire has not been clinically validated. MorgellonsSurvey.org states that methods and limitations will accompany any published findings. A useful report needs to explain how responses were collected and what they can support, alongside the results themselves.

Written by Jeremy Murphree, patient advocate. Survey information checked November 7, 2026. This announcement describes the current questionnaire and participation information; it does not report survey results. Featured image: AI-generated editorial illustration; the form shown is symbolic.